This evening my aunt, who is a primary nurse at the Rockyview General Hospital, shared with me a bit about her experiences as a nurse both before and amidst the pandemic.
In particular, she told me about a program initiated in 2015 called No One Dies Alone. This project of Alberta Health Services is a effort to ensure that any patient, who is without family or friends to visit them as they approach death, is met with some form of intentional companionship.
My aunt told me that, throughout the entire pandemic, she does not think anyone has died alone at her hospital. Most have had family and friends who were able to visit and for those who did not, they were accompanied by volunteers or clergy.
One of this blog’s readers, Lisa Wright, reached out to me to share about the organization she co-founded called the Living Wish Foundation.
Lisa, who is an Registered Nurse specializing in palliative care, and her co-founders established the Foundation with the mission “to provide medically supervised and supported end of life wishes to patients in the region who are facing a terminal diagnosis.” They do this by granting wishes that enable patients to reframe hope so to enhance their quality of life until their death.
I was fascinated by this initiative, and delighted to interview Lisa by phone to learn more.
In particular, I wanted to hear from her about how granting wishes serves to “reframe hope.”
My aunt Danielle Hall (on the right) is a dual citizen who was born in Calgary and now lives and works as a hospice nurse in Chicago.
She traces her interest in working with the dying to when she was just five years old.
“I think how it started, when I reflect back, is that since my mother would often get headaches, she taught me how to rub her head to relieve them,” Danielle reminisced. “My mom would lay on the couch and I would stand behind her, rubbing her head with my fingers in circles around her forehead, and that’s when I first realized that I had a healing touch.”
Surveys consistently indicate that the majority of people would prefer to die at home instead of in a hospital. However, a minority actually do.
Cicely Saunders International just published You Matter Because You Are You, an action plan better palliative care, in which the charity explores the key challenges faced at the end of life.
The report notes that “Too many people with life-limiting illnesses – as well as those approaching death – spend long periods of time in hospital, in part due to a lack of social or community care. Meanwhile, hospital
admissions are rising to unsustainable levels across the country, something that was made all the more apparent as parts of the NHS risked being overwhelmed during the COVID-19 pandemic.”
Most people want to die at home and most hospital workers would be in favour of much greater home care.
Some of the main obstacles to this include: the weakness of social and familial ties, lack of “coordination and information sharing between health and social care providers”, and inadequate emphasis on professional palliative home care.