Creating a Legacy for the Baby We Loved

When my brother Brandon was born prematurely, my mother met at lot of other parents in the neonatal intensive care unit (NICU) who were all living on pins and needles with uncertainty over the future of their respective children.

One woman was continually writing letters to her child about what she was feeling and about what he was going through each day. Together, she and my mom went shopping for clothes at Build-A-Bear because the clothing for teddy bears was the right size for their premature children who were too small to fit any of the baby clothing they could find.

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“I Want to Burden My Loved Ones”

In a short essay, Gilbert Meilaender reflected on attending a workshop on “advance directives” at a nearby hospital. Throughout the workshop, participants expressed their intent not to be a burden on their family members at the end of life. But the more Meilaender thought about this, the more he determined that this was not his view. He reflected, “I don’t know how to make the point other than too crassly–other than by saying that I want to be a burden to my loved ones.”

He then goes on to discuss the various ways he cared for his children that “burdened” him but that he certainly does not resent – teaching sports, playing games, attending recitals, volunteering at school, negotiating dinner choices. While he does not begrudge these things, he does ask, “Is this not in large measure what it means to belong to a family: to burden each other–and to find, almost miraculously that others are willing, even happy to carry such burdens?”

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Emails from the Dead

Some years ago, I dreamt that my mom began receiving emails from my grandfather. They arrived sporadically because they had been auto-scheduled by him to be delivered to us on different dates in the future after his death. For fun, he used a pseudonym formed from aspects of his early life. The electronic letters always included at least one of the humorously crass jokes he’d so delight in telling at the dinner table, especially when clergy were over for dinner. The letters mentioned each of us in turn; first, my mom, then me, then my brother, then my dad. Every time an email of this nature would arrive, my family would all gather around my mom’s computer to read it as if it were “news” for us. Even though the email letters always had the same style and structure – a few jokes, some affirmations of our respective courses in life, and a reminder of his love, receiving them as emails made them seem exciting; we had no idea how many epilogues there would be.

Suffering happens for us, not to us

Today an article appeared in my newsfeed titled, “Rabbi Yehuda Dukes, 39, Inspired Thousands in Health and in Sickness.” In it, I learned that Rabbi Dukes, much-loved around the world and most especially by his wife and their six children, passed away from Covid.

What I found most striking was this interview the rabbi gave in August. Upon recovering from months in a coma, Rabbi Dukes spoke over a video call about his experiences and was honest about the excruciating physical pain he faced in addition to the anguish of being separated from his family.

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Gifts for the Dying

Below is a piece of fan mail for this blog, which came from my mother. Since she has accompanied several persons in beautiful ways before their deaths, she shared with me this list of Gifts for the Dying.

One person for whom my mom cared deeply and to whom she showed great affection was her brother-in-law’s mother, Mrs. Hall.

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