Today Facebook reminded me of this quotation I’d posted a few years ago from Brother Alois’ 2018 letter:
In privileged circles, where people are well fed, well educated, and well taken care of, joy is sometimes absent, as if some people were worn out and discouraged by the banality of their lives.
At times, paradoxically, the encounter with a destitute person communicates joy, perhaps only a spark of joy, but an authentic joy nonetheless.
This reminded me of what has been among the most joyful times of my life – the semester I lived at a homeless shelter as part of an intentional community at the Calgary Mustard Seed.
Sixteen years ago, Terri Schiavo died.
I remember that when she was in the news, I heard the term “vegetative state” for the first time. It immediately struck me as a completely inappropriate term for any person since it explicitly dehumanizes someone by applying an incorrect analogy. Initially the adjective meant, “endowed with the power of growth” but it has come to denote exactly the opposite in public bioethics – that a person is incapable of any significant growth or development. We do not tolerate those who would dehumanize others by calling them cockroaches, so we ought not tolerate the dehumanizing language that refers to persons as “vegetables.”
When I think about Terri Schiavo, I think especially about the impact that her life and death had on my friend Taylor Hyatt. She wrote this great piece several years ago titled, “13 days that changed my life: Remembering Terri Schiavo.”
In the piece, Taylor reflects on how Terri’s story captivated her when she was in Grade 7.
One of this blog’s readers, Lisa Wright, reached out to me to share about the organization she co-founded called the Living Wish Foundation.
Lisa, who is an Registered Nurse specializing in palliative care, and her co-founders established the Foundation with the mission “to provide medically supervised and supported end of life wishes to patients in the region who are facing a terminal diagnosis.” They do this by granting wishes that enable patients to reframe hope so to enhance their quality of life until their death.
I was fascinated by this initiative, and delighted to interview Lisa by phone to learn more.
In particular, I wanted to hear from her about how granting wishes serves to “reframe hope.”
In a short essay, Gilbert Meilaender reflected on attending a workshop on “advance directives” at a nearby hospital. Throughout the workshop, participants expressed their intent not to be a burden on their family members at the end of life. But the more Meilaender thought about this, the more he determined that this was not his view. He reflected, “I don’t know how to make the point other than too crassly–other than by saying that I want to be a burden to my loved ones.”
He then goes on to discuss the various ways he cared for his children that “burdened” him but that he certainly does not resent – teaching sports, playing games, attending recitals, volunteering at school, negotiating dinner choices. While he does not begrudge these things, he does ask, “Is this not in large measure what it means to belong to a family: to burden each other–and to find, almost miraculously that others are willing, even happy to carry such burdens?”
I just finished reading U.S. Senator Ben Sasse’s book, Them: Why We Hate Each Other–and How to Heal.
Published in 2018, it’s an excellent book that deals with the themes of modern loneliness, the monetizing of polarization, and the ways in which technology is making us less free. What I appreciated most about this book, though, is that Senator Sasse does not only present and bemoan the state of affairs. Rather, his preliminary analysis leads to the best part of his book titled, “Our To-Do List” in which he offers some constructive and edifying antidotes.