Founder of modern palliative care, Cecily Saunders, was the 1981 Laureate of the Templeton Prize.
In her address, this section, in which she speaks about “achievement in dying”, especially struck me:
The first challenge was for the better understanding and control of pain. The seven years part time volunteer experience in St Luke’s and the later seven years full time developing this in St. Joseph’s laid the foundation for the increasingly sophisticated symptom control that means hospice today. There was much more to learn from St. Joseph’s from the strength and prayerfulness of the community of the Irish Sisters of Charity and, above all, from uncounted hours with the patients. It was they who showed me by their achievements how important the ending of life could be and many that I knew briefly and a few long stay patients, friends over the years, are the real founders of St. Christopher’s. One, another Pole, special among them all, left me other key phrases. When I told him he had not much further to go, he asked me, ‘Was it hard for you to tell me that?’ When I said that it had been, he said, ‘Thank you. It is hard to be told, but it is hard to tell too. Thank you’. We have to care what we say; this work is hard and demanding as well as rewarding. Two other things he said were separated by some three weeks. The first, ‘I do not want to die, I do not want to die’. The second, ‘I only want what is right’. Sometimes people ask me what I mean by achievement in dying. Here was one, Gethsemane made present today.
Later, in the same address she says:
One of this blog’s readers, Lisa Wright, reached out to me to share about the organization she co-founded called the Living Wish Foundation.
Lisa, who is an Registered Nurse specializing in palliative care, and her co-founders established the Foundation with the mission “to provide medically supervised and supported end of life wishes to patients in the region who are facing a terminal diagnosis.” They do this by granting wishes that enable patients to reframe hope so to enhance their quality of life until their death.
I was fascinated by this initiative, and delighted to interview Lisa by phone to learn more.
In particular, I wanted to hear from her about how granting wishes serves to “reframe hope.”
Surveys consistently indicate that the majority of people would prefer to die at home instead of in a hospital. However, a minority actually do.
Cicely Saunders International just published You Matter Because You Are You, an action plan better palliative care, in which the charity explores the key challenges faced at the end of life.
The report notes that “Too many people with life-limiting illnesses – as well as those approaching death – spend long periods of time in hospital, in part due to a lack of social or community care. Meanwhile, hospital
admissions are rising to unsustainable levels across the country, something that was made all the more apparent as parts of the NHS risked being overwhelmed during the COVID-19 pandemic.”
Most people want to die at home and most hospital workers would be in favour of much greater home care.
Some of the main obstacles to this include: the weakness of social and familial ties, lack of “coordination and information sharing between health and social care providers”, and inadequate emphasis on professional palliative home care.